Programme details

Plenary 5 - Take-home messages
Friday, June 12, 2015 16:15-17:15


Plenary 5 - Take-home messages

Venue: Room Sonja Henie

Conference wrap-up and statements from the floor

Take-home message from the perspective of the IUHPE

Isabelle Aujoulat, International Union of Health Promotion and Education, Louvain (BEL)

Pr. Isabelle Aujoulat has worked in the area of health promotion and education for 22 years in a variety of settings: non-governmental organisations, the private research sector, a hospital, and Université Catholique de Louvain in Belgium since 1999. She teaches health promotion, patient education and qualitative research methods. Her main areas of interest and expertise include: patient empowerment, psychosocial aspects of health behaviours, identity work following the diagnosis of a chronic disease. She is currently conducting research on transition from paediatric to adult-oriented care, as well as research on the contribution of Information and Communication Technologies (ITCs) to patient empowerment and improved patient outcomes. She has addressed various issues of chronically ill patients' life and illness experiences in a number of peer- reviewed articles and as a keynote speaker in several international conferences. Moreover, she is a member of several international working groups that are relevant to the scope of health promotion in clinical settings.

Selected articles:

Aujoulat I, Le Faou A-L, Sandrin-Berthon B, Martin F, Deccache A. Implementing health promotion in health care settings : conceptual coherence and policy support. Patient Education & Counseling 2001; 45 (4): 245-254

Aujoulat I, Libion F, Bois H, Martin F, Deccache A. Communication difficulties of healthcare professionals and family caregivers of HIV infected patients. Patient Education & Counseling 2002; 47 (3) : 213-222

Aujoulat I, Johnson C, Zinsou C, Guédénon A, Portaels F. Psychosocial aspects of health seeking behaviours of patients with Buruli ulcer in southern Benin. Tropical Medicine & International Health 2003; 8 (8) : 750-759

Aujoulat I, Simonelli F, Deccache A. Health Promotion needs of children and adolescents in hospitals : a review. Patient Education & Counseling 2006:  61(1): 23-32

Pélicand J, Gagnayre R, Sandrin-Berthon B, Aujoulat I. A therapeutic education programme for diabetic children : recreational tools, creative methods, and use of puppets. Patient Education & Counseling 2006; 60 (2): 152-163

Aujoulat I, D’Hoore W, & Deccache A. Patient empowerment in theory and practice: polysemy or cacophony? A review. Patient Education and Counseling 2007; 66(1): 13-20

Aujoulat I, Luminet O, & Deccache A. The perspective of patients on their experience of powerlessness. Qualitative Health Research 2007; 17(6): 772-785

Aujoulat I, Marcolongo R., Bonadiman L, Deccache A. Reconsidering patient empowerment in chronic illness: A critique of models of bodily control and self- efficacy. Social Science and Medicine 2008; 66(5): 1228-1239

Aujoulat I, Libion F, Renard F, Berrewaerts J, Deccache A. Adolescent mothers’ perspectives regarding reproductive health needs: a qualitative exploratory study in Belgium. Patient Education and Counseling 2010; 81(3): 448-453
Aujoulat I, Deccache A, Charles A-S, Janssen M, Struyf C, Pélicand J, Ciccarelli O, Dobbels F, Reding R. Non-adherence in adolescent transplant recipients: The role of uncertainty in health care providers. Pediatric Transplantation 2011; 15(2): 148–156

Aujoulat I, Janssen M, Pire A, Mansveld M, Reding R. The psychosocial impact of presenting adolescent transplant recipients with the possibility of a simplified regimen: implications for patient education during transition to self-managed care. Ther Patient Educ/Educ Ther Patient 2013; 5(1):107–112

Aujoulat I, Young B, Salmon P. The psychological processes involved in patient empowerment. Orphanet Journal of Rare Diseases 2012, 7(Suppl 2):A31

Aujoulat I, Janssen M, Libion F, Charles AS, Struyf S, de Magnée C, Smets F, Stephenne X, Sokal E, Lerut J, Cicarelli O, Reding R. Internalizing Motivation to Self-Care: A Multifaceted Challenge for Young Liver Transplant Recipients. Qualitative Health Research 2014, 24(3) 357–365

Aujoulat I, Jacquemin P, Rietzchel E, Scheen A, Tréfois P, Wens J, Darras E, Hermans M. Factors associated with clinical inertia: An integrative review. Advances in Medical Education and Practice 2014:5 141–147

Thys K, Schwering K-L, Siebelink M, Dobbels F, Borre P, Schotmans P, Aujoulat I. The long-term psychocial impact of living-related donation in pediatric liver transplant recipients. A systematic rewiew. Transplant International. Article first published online: 21 NOV 2014 - DOI: 10.1111/tri.12481

Selected invited conferences:

Health promotion needs of children and adolescents in hospitals.11th International Conference of Health Promoting Hospitals. 2003, Firenze, Italy

Non-Adherence: can it be predicted? Opening Ceremony at the 5th Conference of the International Pediatric Transplant Association, 2009, Istanbul, Turquie

How can psychiatric morbidity best be assessed and treated in pediatric settings? IPTA 6th  Congress on Pediatric transplantation, Post-graduate course, 25-28 June 2011, Montreal, Canada

Empowering patients and their families. What is empowerment? Perspective from all stakeholders to encourage patient empowerment. 6th  European Conference on Rare Diseases & Orphan products (ECRD 2012), Brussels, 23-25 May 2012, Belgium

The challenge of self-management in adolescent transplant recipients. 1st German Transition Congress of adolescents with chronic renal failure, 8–11 november 2012, Hannover, Germany

Take-home message from the perspective of the Norwegian Directorate of Health

Johan Torgersen, Specialized Health Care Services Division, Norwegian Directorate of Health (NOR)

Photo: © Rebecca Ravneberg/ Helsedirektoratet

Johan Torgersen is Director General of the Division of Specialized Health Care at the Norwegian Directorate of Health. He is a certified specialist in anesthesiology and PhD from the University of Bergen.  Before commencing his work at the Norwegian Directorate of Health Johan Torgersen chaired the Norwegian Junior Doctors’ Association and served as board member in the Norwegian Medical Association. He has more than ten years’ experience as a clinician in Norwegian hospitals and is a published researcher in the field of intensive care medicine.
The Norwegian Directorate of Health is an executive agency and competent authority subordinate to the Norwegian Ministry of Health and Care Services.
The Division of Specialized Health Care has a wide range of tasks and obligations related to national specialized health care services. As a competent authority  and on the basis of high level knowledge in healthcare science and law we serve as an autonomous advisory organization both to the general public and national healthcare services. Furthermore we provide technical and legal advice to the Ministry of Health- and care services within our field of expertise.

Take-home message from the perspective of the Norwegian Women's Public Health Association

Grete Herlofson, Norwegian Women’s Public Health Association (NOR)

Grete Herlofson - biographical note

Grete Herlofson was born in 1969 and serves as the Secretary General for the Norwegian Women’s Public Health Association (NKS). The organization is the largest women’s organization in Norway, and focus on women’s living conditions by research on women’s health, working on behalf of women who have been exposed to violence, minority women’s issues as well as improvement of women’s rights.

NKS also runs various institutions in Norway as nursing homes, children’s institutions, specialist hospitals etc as service provider for the government.

Grete came from the position as assisting Secretary General for the Norwegian Red Cross, where she also was responsible for Norwegian Red Cross activities within health and social services. She has extensive experience from civil sector, serves as board member in various volunteer- and health organizations in Norway, and is engaged in various projects to enlarge the volunteer engagement in Norway.

Previous in her career Grete was engaged in international humanitarian work trough the Norwegian Red Cross international involvement.


President of Planetree, Vice-President of the HPH Governance Board, USA

Susan Frampton is the President of Planetree, a non-profit advocacy and membership organization that works with a growing international network of healthcare provider organizations implementing patient-/person-centered models of care. Dr. Frampton, a medical anthropologist, has authored numerous publications, including the third edition of Putting Patients First (Jossey-Bass 2013), a chapter in Providing Compassionate Health Care (Routledge 2014), and the National Academy of Medicine Discussion Paper Evidence-Base for Patient-Engaged Care (pending 2017). Dr. Frampton currently co-chairs the Advanced Illness Care Action Team convened by National Quality Form, serves on the Governing Board for the WHO-CC International Network of Health Promoting Hospitals, has participated on The Joint Commission’s Expert Advisory Panel on culturally competent patient-centered care standards, and currently chairs the NAM’s Scientific Advisory Panel on the Evidence Base for Patient-Centered Care. In addition to speaking internationally on culture change and patient experience, she was honored in 2009, when she was named one of “20 People who Make Healthcare Better” by Health Leaders Magazine.

Frode Stang, Conference facilitator

Frode Stang is a former TV news anchor and reporter at the Norwegian Broadcasting Corporation. Today he runs his own company as a communications advisor, conference facilitator and film producer with a variety of corporate customers in both the private and public sector in Norway.